For six years, specialists at Great Ormond Street Hospital (GOSH) searched for a diagnosis for Scarlett. Her genetic condition is still undiagnosed and includes some learning difficulties. This Learning Disability Week (20-26 June), Scarlett’s dad Simon describes the family’s GOSH experience and talks about being a part of a steering group led by Jim Blair, Consultant Nurse, Intellectual (Learning) Disabilities, to improve the experience of patients and parents with learning disabilities at GOSH.
This week is Learning Disability Awareness Week (20-26 June). Earlier this week Jim Blair, Consultant Nurse Learning Disabilities at Great Ormond Street Hospital (GOSH), ran a health experience day in the Lagoon. Nurses, dental nurses, Health Care Assistants, Play Therapists and students took part to highlight the services available to patients with learning disabilities. It’s been over two years since Jim first featured on the blog as part of our ‘Day in the life…’ series, so we wanted to find out what he’s been up to:
Brain Tumours are the most common tumours that develop in children and about 400 children will develop them every year. There are more than 120 different types of brain tumour and Great Ormond Street Hospital (GOSH), a world leader in the treatment of paediatric cancers, sees many patients battling with these conditions. One of our patients, Olivia, found out she had a brain tumour when she was seven years old. Since then she has undergone five operations to remove it and GOSH became a second home to her. Now, aged 18, she recounts her story and tells us why she still keeps in touch with GOSH.
Earlier this year, six of our fantastic nurses made the epic trek up Mount Kilimanjaro, one of the World’s tallest mountains, to raise money for the patients at Great Ormond Street Hospital (GOSH). The team work with young patients undergoing chemotherapy, who inspired them every day with their resilience and courage to take on a challenge of their own.
As it’s Diabetes Awareness week (12 – 18 June), we’re shining a spotlight on the great work the hospital does in this area. Great Ormond Street Hospital (GOSH) and the University College Hospital (UCH) together provide the largest specialist diabetes service for children and young people in the whole of Europe. GOSH supports children with complex diagnoses and has a special unit for patients who have Cystic Fibrosis Related Diabetes (CFRD). CFRD is slightly different to other types of diabetes and is caused by a build-up of thick secretions in the pancreas. These secretions stop cells producing a hormone called insulin, which is necessary for regulating blood sugar levels. Patient Shannon, 16, has been coming to GOSH for CFRD treatment since she was a baby. Here’s her story about her more recent stays at GOSH.
Great Ormond Street Hospital (GOSH) has 1,046 active volunteers who donated an incredible 218,000 hours in the past year – that equates to approximately £2,045,000 worth of donated time. So the saying ‘we simply couldn’t do it without them’, has never rang more true.
Volunteers across the country contribute hours of their time to supporting the work of the hospital and charity, and our Corporate Partners are no different.
As part of Volunteers’ Week, we want to say a huge thank you to all of our partners who have supported us throughout the year. Their contributions have made a big difference to the experiences of the patients and their families and we are very grateful to them.
The Tick Tock Club is a ‘giving club’ for individuals, trusts, foundations and companies, who are passionate about children’s healthcare.
This volunteers week, we talk to The Tick Tock Club volunteer Chairman, Grahame Chilton, who is also Chief Executive of Arthur J. Gallagher International and runs the largest motorsport team outside Formula 1®.